Les REVES de THALIA

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Who is Thalia :

Thalia suffers from a rare neurological disease called Alternating Hemiplegia of Childhood (AHC)

Thalia has incredible strength and always finds an opportunity to smile. A cure is possible. Help Thalia make her dreams come true. Find out more about THALIA

AHC is a very rare disease, with only around sixty known cases in France. Thalia's specific genetic mutation has only been identified in two other patients worldwide.

What would you do if your child was diagnosed with a devastating illness, with no cure, no effective treatment and minimal research funding? This is our reality.

With a few of AHC patients, hope of finding a treatment for THALIA is limited:

There is not enough research, nor enough funding to find a cure in time and change her life. However, there is hope… The path to treatment for Thalia and other children suffering from this genetic disease, may lie in gene therapy or medical treatments that can stop the symptoms and progression of the disease.

We hope and dream to change this

THALIA'S Dreams

THALIA'S DREAMS

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